I Have More Health Problems Than Dad Does!

Sunday June 27, 2010
173 days since accident
150 days in Colorado

The last week has been very hot, with the occasional afternoon rains, to cool things down. Unfortunately, the rain has done nothing to help with my MCTD flair-ups. Before my illness, I loved the summer because it meant fewer days with back pain (worst in the winter and early spring). However, the lupus-like condition doesn’t fair well in the heat, so I lose on both ends!

My father worries when I sleep a lot during the day, but sleep helps me feel better, and when I take a couple of naps I function better overall. I try not to tell my father too much about my health problems because I can see how much it scares him. However, the fact is, there are days when I just can’t get out of bed, period. I have learned a long time ago that it is best to listen to the signals from my body because when I ignore those signals, I always regret it later.

Besides, I have the greatest family in the world! I have been very fortunate to have two teenagers who just instinctively do whatever has to be done on the days that I am incapacitated. There have been more times, than not, when my husband comes home after working a long night shift, and rather than go to sleep, he would help me. I am a very fortunate woman and I never loss sight of this. Nevertheless, for dad, seeing me in pain can be difficult for him to handle. Ironic really, I am 50 years old, and on more prescription medication than dad is at almost 90!

So what do you do when the caregiver has more health problems than the elderly parent does? Nothing, as a family you must find ways to pull together and do your share to help. It doesn’t matter if my father was living with us or not. I still have my days when I can’t function as well as I would like too. Fortunately, I have figured out a system to circumvent the frequencies of my flair-ups. Still it is difficult for me, as a type-A personality I have always been able to multi-task and rarely ever put anything off for the next day.

I have had to discipline myself and accept the fact that it is ok not to finish everything in one day! I think this philosophy has also helped my father because he has many days when he is depressed because his mind is stronger than his body. My motto:

Don’t put off for tomorrow what you can do today

Has been replaced with:

There is always tomorrow…